07 June 2010 - Meningitis Trust team up with Operation Transformation stars
17 May 2010 - Get Mellow, Go Yellow and help charity at the same time!
12 May 2010 - Families Urged to learn Meningitis Symptoms
19 April 2010 - Miriam O’Callaghan and the Children of Gardiner Street National School Join Hands For World Meningitis Day
29 March 2010 - Survey points to true impact of meningitis on Irish Population
17 Feb 2010 - Lorraine Keane And Baz Ashwamy Go Back To School For The Meningitis Trust Teachers Handbook Campaign
1 Feb 2010 - Meningitis Trust selected as Charity of the Year for MyKidstime website
October 2009 - Charity Backs Corporate Social Responsibility Week
October 2009 - International Day For Older Persons
September 2009 - Predicted Flu Outbreaks Cause Concern For Meningitis Charity
September 2009 - Meningitis Trust Issues ‘Back To College’ Warning
September 2009 - New Mums Now Better Informed About Meningitis
August 2009 - Meningitis Trust issues ‘back to school’ warning
July 2009 - Don't overlook meningitis for swine flu
June 2009 - Oranmore bathed in sunshine as family and friends remember Aoibhe
June 2009 - Flora Women's Mini Marathon
April 2009 - World Meningitis Day
Topaz picks the Meningitis Trust as its charity partner
NIB chooses the Meningitis Trust as its charity partner
Dublin Bus Community Support Programme Award
Meningitis Trust letter released August 2010
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Letter to the Editor: KEY MENINGITIS RESEARCH HIGHLIGHTS WORRIES
12 August 2010
Dear Sir / Madam,
I am writing on behalf of the Meningitis Trust in response to this week’s news about the breaking meningitis research that has just been published.
The research - which has highlighted a potential link between people’s genes and the susceptibility of them contracting meningococcal disease (meningitis) - is an important step forward in the long and continued battle against this deadly disease.
However, with the research hitting the headlines for most of the week, we are concerned about the impact that this story may have on people whose lives have been torn apart by meningitis; highlighting new fears or reigniting emotions from the experience.
Because of this, we want to remind people that we are here to help. Every day we see first-hand the devastation, trauma and ongoing emotional turmoil that meningitis brings to many individuals and families across Ireland. We work with everyone affected by the disease; offering them a lifeline when they need it most.
Our unique range of free services give vital support to people who are struggling with the sudden impact of the disease, and we would like to invite anyone who might be in need of our help – in whatever form – to get in touch with us today.
We are dedicated to helping everyone who’s been affected by the disease – whether it was two weeks ago or 20 years ago, our services and support are here for you for life.
For more information about the research, our free support services, meningitis and vaccines, please visit our website
www.meningitis-trust.ieor call one of our nurses 24-hours a day for free on 1800 523 196.
Meningitis Trust team up with Operation Transformation stars
The Meningitis Trust’s biggest ever team of 160 people have pounded the pavements this afternoon with a little help from RTE’s Operation Transformation stars Anna Naughton, Connor O’Connor and Penny Dwyer in the Flora Women's Mini Marathon. 
Penny’s daughter, Melody (who's picture is pinned to the T-shirts), died from meningitis in 2008. After becoming close friends on Operation Transformation, Penny, Anna and Connor laced up their trainers for the mini-marathon to raise vital funds for Ireland’s only professional support organisation, the Meningitis Trust. The team are also paying tribute to the late Gerry Ryan who supported them throughout Operation Transformation.
Carole Nealon, General Manager of the Trust says; "The team this year is the biggest ever and is set to raise much-needed funds for us. We are delighted and incredibly grateful that Anna, Connor and Penny are able to support our work".
The Meningitis Trust is the only charity in Ireland to offer a range of free professional services and community based support for people affected by meningitis and relies solely on voluntary donations to continue its work. The Trust has supported Penny and her family throughout the tragic time and will continue for as long they need the support.
Get Mellow, Go Yellow and help charity at the same time! back to top
‘Chill out and have some fun this Summer’ is the message from one of Ireland’s leading parents’ websites and their Charity Partner.
This year, Mykidstime.ie has joined forces with Ireland’s meningitis support organisation the Meningitis Trust, and they are encouraging people to take part in ‘Mellow Yellow’, a fun event with a serious aim, as Carole Nealon, General Manager of the Meningitis Trust explains: ‘The idea behind Mellow Yellow is to take a few minutes out of your busy day, and spend time with colleagues or friends. What you do is up to you, as long as it has a yellow theme!
You can dress in yellow for the day, have a desk-decorating competition, or choose one of the many other options included in the Mellow Yellow Fun Pack, which is available to download FREE from www.meningitis-trust.ieAll we ask is that everyone taking part gives a small donation (suggested donation €3 per person) – that’s enough to help us provide a potentially life-saving ‘Signs and Symptoms’ card to each family in a small school’.
Mykidstime.ie and the Trust have also created a special "Mellow Yellow Recipe Booklet" available with "yellow-themed" recipes from some of Ireland’s best-loved chefs, including Rachel Allen and Kevin Thornton. The ‘Mellow Yellow Recipe Booklet’ can be downloaded from website www.mykidstime.ie/recipesbooklet for only €5, and all proceeds go to the Meningitis Trust.Jill Holtz of Mykidstime says, "We're absolutely thrilled to be associated with the Meningitis Trust, which is doing such wonderful work supporting families and communities throughout Ireland. The Trust relies on voluntary donations to continue, and ‘Mellow Yellow’ is an ideal way for Mykidstime and other companies throughout Ireland to show our support. And for some of our parents who are at home with kids, they can still support the Mellow Yellow campaign and get some great recipes at the same time.’
www.mykidstime.ie is a free resource for families with a full range of listings for activities, classes and clubs for children of all ages, and information on services and events for children and families.
The Meningitis Trust is Ireland’s meningitis support organisation and offers a range of free services to people affected by the disease, including a 24 hour nurse-staffed Helpline (1800 523 196), family support and bereavement counselling.
The Meningitis Trust’s biggest ever team of 160 people have pounded the pavements this afternoon with a little help from RTE’s Operation Transformation stars Anna Naughton, Connor O’Connor and Penny Dwyer in the Flora Women's Mini Marathon.
Penny’s daughter, Melody (who's picture is pinned to the T-shirts), died from meningitis in 2008. After becoming close friends on Operation Transformation, Penny, Anna and Connor laced up their trainers for the mini-marathon to raise vital funds for Ireland’s only professional support organisation, the Meningitis Trust. The team are also paying tribute to the late Gerry Ryan who supported them throughout Operation Transformation.
Carole Nealon, General Manager of the Trust says; "The team this year is the biggest ever and is set to raise much-needed funds for us. We are delighted and incredibly grateful that Anna, Connor and Penny are able to support our work".
The Meningitis Trust is the only charity in Ireland to offer a range of free professional services and community based support for people affected by meningitis and relies solely on voluntary donations to continue its work. The Trust has supported Penny and her family throughout the tragic time and will continue for as long they need the support.
Get Mellow, Go Yellow and help charity at the same time! back to top
‘Chill out and have some fun this Summer’ is the message from one of Ireland’s leading parents’ websites and their Charity Partner.
This year, Mykidstime.ie has joined forces with Ireland’s meningitis support organisation the Meningitis Trust, and they are encouraging people to take part in ‘Mellow Yellow’, a fun event with a serious aim, as Carole Nealon, General Manager of the Meningitis Trust explains: ‘The idea behind Mellow Yellow is to take a few minutes out of your busy day, and spend time with colleagues or friends. What you do is up to you, as long as it has a yellow theme!
You can dress in yellow for the day, have a desk-decorating competition, or choose one of the many other options included in the Mellow Yellow Fun Pack, which is available to download FREE from www.meningitis-trust.ieAll we ask is that everyone taking part gives a small donation (suggested donation €3 per person) – that’s enough to help us provide a potentially life-saving ‘Signs and Symptoms’ card to each family in a small school’.
Mykidstime.ie and the Trust have also created a special "Mellow Yellow Recipe Booklet" available with "yellow-themed" recipes from some of Ireland’s best-loved chefs, including Rachel Allen and Kevin Thornton. The ‘Mellow Yellow Recipe Booklet’ can be downloaded from website www.mykidstime.ie/recipesbooklet for only €5, and all proceeds go to the Meningitis Trust.Jill Holtz of Mykidstime says, "We're absolutely thrilled to be associated with the Meningitis Trust, which is doing such wonderful work supporting families and communities throughout Ireland. The Trust relies on voluntary donations to continue, and ‘Mellow Yellow’ is an ideal way for Mykidstime and other companies throughout Ireland to show our support. And for some of our parents who are at home with kids, they can still support the Mellow Yellow campaign and get some great recipes at the same time.’
www.mykidstime.ie is a free resource for families with a full range of listings for activities, classes and clubs for children of all ages, and information on services and events for children and families.
The Meningitis Trust is Ireland’s meningitis support organisation and offers a range of free services to people affected by the disease, including a 24 hour nurse-staffed Helpline (1800 523 196), family support and bereavement counselling.
FAMILIES URGED TO LEARN MENINGITIS SYMPTOMS back to top
Ireland’s national meningitis support charity the Meningitis Trust is encouraging all families throughout the country to be aware of the threat of meningitis in time for ‘International day for Families’ on Saturday May 15.
The Trust, which is the leading voice on the impact of meningitis in Ireland, is asking everybody to familiarise themselves with the signs and symptoms of the disease in a bid to save lives. The call was issued after it found that as many as one in three adults have either experienced the disease themselves, or know someone who has.
The Meningitis Trust produces FREE life-saving cards designed to fit inside a wallet or purse which display the signs and symptoms of meningitis. To mark ‘International day for Families’, the charity is urging everyone to get their own card now and to carry it at all times. It is available free from the Meningitis Trust’s helpline on 1800 523 196 or to download from http://www.meningitis-trust,ie.
The Trust is also encouraging those families which have experienced the disease, and may be in need of support and advice, to contact its team of professionals.
One family who did just that were the Feeney family from Glasnevin in Dublin. Their six month old daughter, Catriona, contracted meningitis during Easter 2006 whilst being babysat by her grandparents. During Easter lunch Catriona’s eyes suddenly became unfocused and glazed over, and then her arm started to shake.
Bernadette Feeney, Catriona’s mother explains: "I was attending my own mother’s funeral at the time, so Catriona was staying with her paternal grandparents Doreen and Pat. We are so grateful that they were aware of meningitis, and knew that there was something seriously wrong with Catriona. And also to our local Doctor, who trusted their instincts and got Catriona to hospital as quickly as possible. We thought we were going to lose her, but thanks to the wonderful care that she received, Catriona came out a coma after three days.
Bernadette continues; "Thankfully Catriona has made a full recovery, and the whole family have received tremendous support and advice from the Meningitis Trust, who have helped ease our fears about this terrible disease and answered our questions about the likelihood of it recurring. The experience that we went through means that it has become so important to me that the Meningitis Trust can continue educating the public about the signs and symptoms of meningitis, and we’re trying to do all we can to help.
"I know of other families who have not been as fortunate as ourselves, or who have been left with after-effects including deafness and behavioural problems, and the Meningitis Trust is there for them too".
Common signs and symptoms of meningitis include fever (possibly with cold hands and feet), vomiting, headache, stiff neck, dislike of bright lights, joint or muscle pain, drowsiness, confusion and, also, in babies, dislike of being handled, pale blotchy skin, unusual cry, and a blank staring expression. Both adults and children may have a rash (septicaemia) that doesn’t fade under pressure. Symptoms can appear in any order and some may not appear at all. Rapid deterioration will take hold if left untreated.
Carole Nealon, General Manager of the Meningitis Trust says; "Meningitis doesn’t just affect the individual, as the Feeney family discovered - the disease can dramatically change the whole family. Through our work we know that meningitis can have a ‘ripple effect’; each case can affect not only the person themselves, but up to 20 other people - close family, friends, work colleagues and/or school friends even whole communities".
For advice and details of the range of free professional support services available from the Meningitis Trust, which include counselling, home and hospital visits and a 24-hour nurse-staffed helpline - call the Helpline 1800 523 196 or visit www.meningitis-trust.ie.
Miriam O’Callaghan and the Children of Gardiner Street National School Join Hands For World Meningitis Day back to top
Today, well known TV presenter and mum of 8 Miriam O’Callaghan and a host of children from Gardiner Street National School joined hands in launching World Meningitis Day. Appropriately, as the theme of the event is ‘Join Hands Across the World against Meningitis’ the launch took place at ‘The Wishing Hand’ sculpture in the grounds of the Department of Education.
World Meningitis Day is a worldwide initiative by the Confederation of Meningitis Organisations (CoMO) of which the Meningitis Trust is a founding member. April 24, 2010, will be the second World Meningitis Day and it is hoped people around the globe will join hands to draw attention to meningitis and its life changing after-effects. In Ireland, this will be through a virtual joining of hands on the CoMO website (www.comoonline.org) which will have links from the charities’ website http://www.meningitistrust.ie
Carole Nealon, Meningitis Trust, commented: "Organisations in nineteen countries from all quarters of the world are calling on the global community to come together on April 24th 2010 to participate in World Meningitis Day. Meningitis is a global killer, and every year in Ireland 250-300 people contract the disease, and millions more around the globe. It is estimated that each case in Ireland impacts on up to 20 other people – friends, family and work colleagues and we hope World Meningitis Day will highlight the global impact of these diseases and the importance of continued research, education and awareness in creating a world free from meningitis and septicemia."
"For every individual across Ireland who has meningitis there are many more who have been touched by the disease and for many their lives have changed forever. We hope World Meningitis Day will show them that they are not alone and that meningitis organisations across the world are working together to help save lives." For more information contact the Meningitis Trust’s 24 hour nurse led Helpline on 1800 523 196.
To mark World Meningitis Day on April 24th, the Meningitis Trust is asking as many people as possible to take part in holding hands in a virtual global community through the link on http://www.meningitis-trust.ie
Survey points to true impact of meningitis on Irish Population back to top
A survey carried out by national charity, the Meningitis Trust, in partnership with Millward Brown IMS, suggests the true impact of this devastating disease is far greater than many people realise.
Results indicate that as many as 34,000 people living in Ireland today have had either viral or bacterial meningitis at some time in their lives – and many of them have been left to cope with the after-effects every day.
The survey also suggests that up to one million adults in Ireland – as many as one adult in every three - knows of someone who has contracted this life shattering disease.
"That doesn’t mean they have read about it in a newspaper or seen something on television," said Carole Nealon, General Manager of the Meningitis Trust. "It means relatives or friends, people they work with or people from their local community. It could be their childminder or teacher, someone at the gym they go to, or a parent they know from the school gates. It is people that they come into contact with every day.
"These survey results reflect what we have believed for many years. For every individual who has fought meningitis there are many more whose lives have been touched by it in one way or another. In many cases their lives will never be the same again."
Meningitis is known as a killer disease. It kills more children under the age of five than any other infectious disease in Ireland. But it can strike anyone, at any time, and at any age. Around 300 cases of bacterial meningitis occur every year in Ireland and there are probably more than double that number of cases of viral meningitis.
"The truth is that many people do survive meningitis but hundreds are left with debilitating after-effects including deafness, blindness, limb loss, learning difficulties, memory issues and behavioural problems. The impact may also cause relationship difficulties and an enforced change of lifestyle.
"At the same time their families may be struggling to understand the disease and having to take lots of time off work, friends don’t know what to say or do and the local community is scared," added Carole Nealon. "Meningitis is like a pebble dropped into a pool of water. It has a ripple effect which has an impact on more people than many realise. That’s why the work of the Meningitis Trust is so important. We are here for everyone struggling to cope with the impact of meningitis.
"We believe there are many people today suffering in silence who really need our support and we know that without doubt there will be many hundreds more in future. There will always be meningitis and that means there will always be a need for the Meningitis Trust."
Hundreds of people are helped each year through the Trust’s 24-hour helpline (1800 523 196), professional counselling and bereavement support, home visits, and community support. Additionally the Trust distributes thousands of leaflets, posters, symptoms cards, information sheets and other materials which raise awareness of meningitis.Carole Nealon added: "All that requires a lot of money and we rely entirely on the generosity of individuals, companies and organisations, people who give us voluntary donations. We want to continue doing as much as possible to make life after meningitis worth living again – but we need help to do that."
Lorraine Keane And Baz Ashwamy Go Back To School For The Meningitis Trust Teachers Handbook Campaign back to top
To-day Lorraine Keane and Baz Ashwamy, helped launch the Meningits Trust Teachers Handbook campaign along with children Philip O’Connell (5), Neamh Le Blanc (6), Kevin Le Blanc (11), Cian Brennan (12), Daire O’Connell (10) and Claire Nealon (17) in Dublin Zoo. The pack will be available for teachers to download from www.meningitis-trust.ie/Resources. Recognising that children and teenagers are at most risk of contracting meningitis, the Meningitis-Trust has developed a Teachers Handbook- “Meningitis -Education, designed specifically for people working in a school setting. It contains all the information that primary and secondary schools needs to know about meningitis, and suggestions of what to do if they are faced with a case.
‘The INTO welcomes the introduction of the Meningitis Trust Teachers Handbook’ and would encourage schools to download the information at the earliest opportunity. Meningitis is a frightening disease and unfortunately the children in our care are at an age when they are particularly at risk. The Meningitis Trust handbook provides essential and practical information about the disease, and will equip teachers with the knowledge they need to properly support a colleague or pupil who is affected, and to manage the impact of this devastating and life-threatening disease on their school.' - Maire Ni Chuinneagain, President INTO and a primary principal teacher in Galway
The Meningitis Trust offers support to everyone who has been touched by meningitis and the Trust’s services and support are a lifeline to help them rebuild their lives. It also raises awareness of the signs and symptoms of meningitis and associated septicemia. Meningitis is inflammation of the meninges, the linings that surround and protect the brain. Meningitis can be caused by many different organisms including bacteria, viruses and fungi. Vaccines are the only way to prevent meningitis, and until we have vaccines to prevent all types you need to know the signs and symptoms to look out for and the action to take.Parents pick the Meningitis Trust for 2010 Mykidstime Charity back to top
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Carole Nealon, General Manager of the Meningitis Trust, said “We're absolutely thrilled that the Meningitis Trust has been selected as Charity of the Year for 2010 for Mykidstime. The passion that has come through about the Trust has taken our breath away. Winning is very nice icing on that cake! Each charity on the shortlist would have been a worthy winner, which makes us all the more proud and grateful that the Trust has been chosen.”The Meningitis Trust works throughout Ireland, raising awareness of meningitis and septicaemia through an education and training programme and offering practical support for life to people coping with the devastating after-effects. Specifically, the Meningitis Trust provides support through the following free services:
• a 24-hour Helpline led by specially trained nurses offering information and support in over 100 languages - 1800 523 196
• professional bereavement and family counselling
• a home visiting service The Trust also holds Family Days for affected families, and distributes thousands of potentially life-saving Signs and Symptoms cards to communities throughout Ireland.
Information is also available on it’s website www.meningitis-trust.ie . The Mykidstime Charity of the Year is given full support and promotion through the website and e-zines to parents to help raise awareness and funds throughout the year.
www.mykidstime.ie is a free resource for families with a full range of listings for activities, classes and clubs for children of all ages, as well as information on services and events for children and families. For more information log onto www.mykidstime.ie or email info@mykidstime.ie
October 2009 Meningitis Warning As Clocks Go Back back to top
Carole Nealon, General Manager of the Meningitis Trust, says: “Every year we see an increase in cases of meningitis over the winter months. Nearly 60% of the most serious bacterial types occur between now and March, and although the disease affects all ages, over half of those cases will be in children under 5” “Fighting common infections like colds and flu weakens our immune systems, leaving us all more vulnerable to meningitis. People are also at an increased risk as in winter we tend to spend more time indoors and in closer proximity to others, which means germs are spread more easily.”
The early symptoms of meningitis can easily be mistaken for those of flu. Symptoms include fever, headache, stiff neck, dislike of bright light, drowsiness, joint pain, vomiting, diarrhoea, confusion and in some, but not all cases, a rash. Symptoms can appear in any order and some may not appear at all. It is important to trust your instincts.
Carole Nealon continues: “Worryingly, the symptoms can easily look like other, less serious conditions. With Winter upon us, it is all the more important to err on the side of caution, be aware of the signs and symptoms of meningitis, and seek medical attention as a matter of urgency if you suspect the disease.”
Meningitis and meningococcal septicaemia (blood poisoning) can affect anyone, of any age, at any time and can kill within hours. Survivors can be left with disabling after-effects, including brain damage, sight and hearing loss, and where septicaemia has occurred, loss of limbs and scarring.
The Meningitis Trust is dedicated to providing practical and emotional support for life to anyone affected by the disease in Ireland. It has a range of professional support services, which provide a lifeline to those who are struggling to cope with the impact of meningitis.
The charity is also committed to raising awareness of the disease and produces a range of awareness information materials, such as a handy credit card sized signs and symptoms card. The cards are available FREE by calling the Trust’s freephone 24-hour helpline on 1800 523 196 and are designed to be kept in people’s purses and wallets at all times.
9 October 2009 Charity Backs Corporate Social Responsibility Week back to top
Next week – 12 to 16 October – is Corporate Social Responsibility Week in Ireland and one of the country’s leading charities, the Meningitis Trust, is encouraging companies to get involved with the initiative and show their softer side, whilst benefiting charities who rely on the generosity of others to continue their work.
The Meningitis Trust understands the importance of working with businesses and already has a fundraising and awareness raising event called ‘Get Mellow, Go Yellow’, aimed specifically at businesses and their staff.
It’s more important than ever for people to get involved with the Trust’s vital work, as during the winter months cases of the disease increase. Although it’s a disease commonly associated with babies and young children, it can affect anyone, of any age, at any time, so people of all ages need to be aware.
Almost 1 in 3 adults in Ireland have either had meningitis or know someone who has, and the Meningitis Trust is urging businesses to get involved in a practical way by taking part in ‘Get Mellow, Go Yellow’ during October and November. Simply invite staff to wear yellow for the day, put up yellow decorations around the office, or hold a yellow-themed coffee break, cocktail event or dinner party! The suggested donation is €3 per person, and all the money raised will help the Meningitis Trust support people struggling to cope with the impact of meningitis in Ireland right now.
Ger Mills, Development Officer at the Meningitis Trust, says: “Meningitis can strike in an instant, but its impact can last a lifetime. Survivors can face a future with devastating after-effects; families can face a future without a loved one. Early diagnosis and appropriate medical intervention can make a difference, and knowing the signs and symptoms of meningitis can save lives. By holding a ‘Get Mellow, Go Yellow’ event in your workplace, you can brighten up your own work day, raise awareness amongst your colleagues, and make a real difference to people living with the effects of meningitis.
The Meningitis Trust receives NO statutory government funding and we rely on voluntary donations to continue our 24 Hour nurse-led Helpline (1800 523 196), bereavement and family counselling and Community Nurse services, as well as a range of education and awareness programmes, including a free Employers Pack. Any support at this time would be very welcome as most cases of meningitis occur during the winter months.’
For further information about ‘Mellow Yellow’ please contact the Ger Mills, Development Officer with the Meningitis Trust on 090 6450531/087 9680068 email germills@meningitis-trust.ie/eolas@meningitis-trust.ie or download the details from www.meningitis-trust.ie
October 2009 International Day For Older Persons – October 1 back to top
With ‘International Day for Older People’ coming up tomorrow, October 1, the Meningitis Trust is issuing a warning about the dangers of meningitis in the over 55s as they are considered an ‘at risk’ group for the disease.
Approximately 10% of bacterial meningitis cases occur in the over 55’s, so it’s important for them to be aware of the symptoms of the disease. Also, with many over 55s being grandparents, and with half of all cases of the disease occurring in babies and children under 5, meningitis knowledge is essential to protect not just themselves, but their loved ones too.
Every year the Trust sees an increase in cases of bacterial meningitis over the winter, particularly the most common cause of bacterial meningitis, meningococcal group B, so there’s no better time to talk to people about the disease. There is no vaccine to protect against this particular strain, so vigilance is key.
Identifying the signs and symptoms of meningitis can be difficult as they can easily appear like more common illnesses such as flu. The symptoms of meningitis can include; fever with cold hands and feet, headache, stiff neck, dislike of bright light, drowsiness, joint pain, vomiting, diarrhoea, confusion and in some cases a rash which doesn’t disappear under pressure. Symptoms can appear in any order and some may not appear at all.
The Meningitis Trust is a charity dedicated to providing practical and emotional support for life to anyone affected by the disease in Ireland. It has a range of professional support services, which provide a lifeline to those who are struggling to cope with the impact of meningitis.
The charity is also committed to raising awareness of the disease and produces a range of awareness information materials, such as a handy credit card sized signs and symptoms card. The cards are available FREE by calling the Trust’s freephone 24-hour nurse-led helpline on 1800 523 196 (Ireland); 0800 028 18 28 (Northern Ireland) and are designed to be kept in people’s purses and wallets at all times.
September 2009 Predicted Flu Outbreaks Cause Concern For Meningitis Charity back to topNational meningitis charity – the Meningitis Trust - is calling for people to stay alert to the signs and symptoms of the disease as we head into the autumn months, which sees cases of both flu and meningitis increase.
The predicted flu outbreaks this autumn are a concern to the charity as fighting infections like colds and flu can weaken immune systems, leaving people more vulnerable to meningitis. The Trust is urging people not to mistake meningitis symptoms for those of these illnesses as it can be fatal.
Every year the Trust sees an increase in cases of bacterial meningitis over the winter, particularly the most common cause of bacterial meningitis, meningococcal group B. There is no vaccine to protect against this particular strain, so vigilance is key.
Carole Nealon, General Manager at the Meningitis Trust says, “As there isn’t a vaccine yet for meningococcal group B, we are urging everyone to be aware of the signs and symptoms as the colder months begin to creep in. It’s a common misconception that people think they are protected by vaccines for all strains of meningitis – this is a mistake that could cost lives. “As well as having weaker immune systems from fighting infections, people are also at an increased risk as in winter we tend to spend more time indoors and in closer proximity to others, which means germs are spread more easily.”
The early symptoms of meningitis can easily be mistaken for those of flu and include fever, headache, stiff neck, dislike of bright light, drowsiness, joint pain, vomiting, diarrhoea, confusion and in some, but not all cases, a rash. Symptoms can appear in any order and some may not appear at all.
Carole continues: “Worryingly, the symptoms can easily look like other, more common conditions. As we’ve recently seen with swine flu, it’s extremely important to keep meningitis in mind when someone is displaying flu-like symptoms. Mistaking the symptoms could be fatal. With Winter upon us, it is all the more important to err on the side of caution, be aware of the signs and symptoms of meningitis, and to seek medical attention as a matter of urgency if you suspect the disease.”
Meningitis and meningococcal septicaemia (blood poisoning) can affect anyone at any time and can kill within hours. Survivors can be left with disabling after-effects, including brain damage, deafness and, where septicaemia has occurred, loss of limbs.
The Meningitis Trust is a charity dedicated to providing practical and emotional support for life to anyone affected by the disease. It has a range of professional support services, which provide a lifeline to those who are struggling to cope with the impact of meningitis.
The charity is also committed to raising awareness of the disease and produces a range of awareness information materials, such as a handy credit card sized signs and symptoms card. The cards are available FREE by calling the Trust’s freephone 24-hour nurse-led helpline on 1800 523 196 and are designed to be kept in people’s purses and wallets at all times.
September 2009 Meningitis Trust Issues ‘Back To College’ Warning back to top
Campaign welcomed by Union of Students in Ireland The Union of Students in Ireland has echoed a call by national charity, the Meningitis Trust, for people to be aware of the signs and symptoms of meningitis, as thousands of students in Ireland return to colleges and universities this Autumn.
The charity - which provides practical and emotional support to anyone affected by meningitis - is urging all students, parents and college staff to be vigilant of the signs and symptoms of meningitis and septicaemia (blood poisoning). A Meningitis Trust survey indicates almost 330,000 people in Ireland have experienced meningitis in their family and are living with its life-changing after-effects. Students are one of the most ‘at risk’ groups.
Meningitis is an infectious disease that can affect anyone, of any age, at any time; striking in minutes and killing within hours. The disease can leave some survivors with severe after-effects including brain damage, sight and hearing loss, and where septicaemia has occurred, limb loss and scarring.
Ciarán Fitzpatrick, Welfare Officer with the Union of Students in Ireland said: ‘With the current outbreak of Swine Flu, I would urge students to make themselves aware of meningitis the similarities between the symptoms of both illnesses. Mistaking meningitis for flu could cost lives.’ Carole Nealon, General Manager of the Meningitis Trust, says, “Shared accommodation arrangements, sitting in close confines and prolonged exposure to bacteria can all unfortunately lead to an increased risk of infection. While children under 5 are most ‘at risk’ of meningitis, teenagers and students (15-23 years) are the second most vulnerable group. It is estimated that 10% of the population carry the organism which causes meningitis, but this increases to 25% for students. Transmission of this organism is by droplets going from person to person when coughing, sneezing or through close personal contact such as intimate kissing.’
Identifying the signs and symptoms of meningitis can be difficult as they can easily appear like more common illnesses such as flu. The Meningitis Trust is asking people to learn these signs and to trust their instincts if they suspect anything.
The Meningitis Trust produces FREE, potentially life-saving ‘Signs and Symptoms’ cards designed to fit inside your wallet or purse which display the signs and symptoms of meningitis. The charity is urging everyone to get their own card and carry it at all times. The card is available free from the Meningitis Trust’s helpline on 1800 523 196.
The symptoms of meningitis can include; fever with cold hands and feet, headache, stiff neck, dislike of bright light, drowsiness, joint pain, vomiting, diarrhoea, confusion and in some cases a rash which doesn’t disappear under pressure. Symptoms can appear in any order and some may not appear at all. If concerned, seek medical help immediately.
September 2009 New Mums Now Better Informed About Meningitis back to top
New mums in Ireland are now better informed about meningitis, thanks to national charity, the Meningitis Trust, putting its signs and symptoms cards in Eumom back packs.
Although meningitis can affect anyone, of any age, at any time, babies and children under 5 are the most ‘at risk’ group for the disease; with 50% of all cases occurring within this age group.
Meningitis is a devastating disease that can strike within minutes and kill within hours. Symptoms of the disease can be hard to detect as many are similar to those of more common illnesses like colds and flu. But, with no vaccine available to protect against all strains of the disease, the only way for parents to protect their children is to know the signs and symptoms and to remain vigilant at all times.
Carole Nealon, General Manager at the Meningitis Trust, says; “Meningitis is a disease that parents in particular should be aware of, as it affects babies and children under 5 the most. The speed at which people become ill and the dramatic and sometimes devastating course of events, make meningitis an alarming disease. At the Meningitis Trust, we work to raise awareness of the disease and as small children and babies are unable to say how they are feeling, it’s even more important for their parents to understand what they need to look out for and to act quickly if they suspect the disease.
Carole continues; “A recent survey found that sixty per cent of parents in Ireland who have children under the age of 5 say meningitis is the disease they fear the most. It’s this reason why we’re delighted to have our symptoms cards in the Eumom back packs – arming new mums with the knowledge that could save their child’s life. The pack also includes "You & Your new baby", a useful guide to the first few months of baby's life which carries more information on the Meningitis Trust”. Eumom has a parenting website -www.eumom.ie and you can contact them on 01 280 50 50 if you haven’t received your pack.
Common signs and symptoms include fever (cold hands and feet), vomiting, headache, stiff neck, dislike of bright lights, joint or muscle pain, drowsiness, confusion, and also, in babies, dislike of being handled, pale blotchy skin, unusual cry, and a blank staring expression. Both adults and children may have a rash (septicaemia) that doesn’t fade under pressure. Symptoms can appear in any order and some may not appear at all.
As well as raising vital awareness of the disease, the Trust is also dedicated to providing practical and emotional support to anyone affected by meningitis, through its unique range of professional support services. For those who survive meningitis, some can be left with severe after-effects including brain damage, sight and hearing loss, and where septicaemia (blood poisoning) has occurred, limb loss and scarring. These after-effects can be life-changing - the Trust offers support for as long as it’s needed.
For more information about meningitis, or the work of the Meningitis Trust, simply call its freephone 24-hour helpline on 1800 523 196 or visit www.meningitis-trust.ie
Meningitis Trust issues ‘back to school’ warning back to top
National charity, the Meningitis Trust, is issuing a warning about the dangers of meningitis as students in Ireland return to school, college or university this Autumn.
The charity - which provides practical and emotional support to anyone affected by meningitis - is urging all parents, students and teachers to be vigilant of the signs and symptoms of meningitis and septicaemia (blood poisoning).
The current national interest in Swine Flu means it is particularly important for people to be aware of meningitis and the similarities between the symptoms of both illnesses. Mistaking meningitis for flu could cost lives.
Meningitis is an infectious disease that can affect anyone, of any age, at any time; striking in minutes and killing within hours. The disease can leave some survivors with severe after-effects including brain damage, sight and hearing loss, and where septicaemia has occurred, limb loss and scarring.
While children under 5 are most ‘at risk’ of meningitis, teenagers and students (15-23 years) are the second most vulnerable group. It is estimated that 10% of the population carry the organism which causes meningitis, but this increases to 25% for students. Transmission of this organism is by droplets going from person to person when coughing, sneezing or through close personal contact such as intimate kissing.
Carole Nealon, General Manager of the Meningitis Trust, says, “Shared accommodation arrangements, sitting in close confines and prolonged exposure to bacteria can all unfortunately lead to an increased risk of infection”.
Identifying the signs and symptoms of meningitis can be difficult as they can easily appear like more common illnesses such as flu. The Meningitis Trust is asking people to learn these signs and to trust their instincts if they suspect anything.
The Meningitis Trust produces FREE life-saving cards designed to fit inside your wallet or purse which display the signs and symptoms of meningitis. The charity is urging everyone to get their own card and carry it at all times.
The card is available free from the Meningitis Trust’s helpline on 1800 523 196. The symptoms of meningitis can include; fever with cold hands and feet, headache, stiff neck, dislike of bright light, drowsiness, joint pain, vomiting, diarrhoea, confusion and in some cases a rash which doesn’t disappear under pressure. Symptoms can appear in any order and some may not appear at all. If concerned, seek medical help immediately.
DON’T OVERLOOK MENINGITIS FOR SWINE FLU back to top
Recognising the symptoms of meningitis can be difficult as many of its symptoms are similar to swine flu. The rash that is commonly associated with meningitis doesn’t appear in all cases, so it is vital that people are aware of the other symptoms.
Rapid deterioration will take hold if left untreated - symptoms can appear together and some may not appear at all. They include fever (possibly with cold hands and feet), headache, stiff neck, dislike of bright lights, drowsiness, joint pain, vomiting, diarrhoea and confusion. In babies, an unusual cry, dislike of being handled and refusing feeds are also signs that can point to meningitis. If in doubt, always seek urgent medical advice.
We produce and distribute FREE credit card sized symptoms cards for people to keep in their wallets and purses. To request these, call our freephone 24-hour nurse-led helpline on 1800 523 196 or visit our website at www.meningitis-trust.ie.
We are urging everyone to Trust their instincts - if people are concerned about their own, or someone else’s health, they must seek medical attention immediately. The HSE has an online symptoms checker to help differentiate meningitis and swine flu http://www.hse.ie/eng/swineflu/
ORANMORE BATHED IN SUNSHINE AS FAMILY AND FRIENDS REMEMBER AOIBHE. back to top
A host of celebrities joined family and friends of Aoibhe Carroll as a huge crowd took part in the first ever ‘Aoibhe’s Fun Day’ in Oranmore on Saturday.
Oranmores Lord Mayor, Councillor John Carroll, and rugby heroes Bernie Upton and Miah Milcora, Finian Hanley (names to follow) were among the estimated 1,000 people, many of the them children, who joined in the fun.
‘Aoibhe’s Fun Day’ was the brainchild of Siobhan and Noel Carroll, who wanted to celebrate the life of their eldest child Aoibhe, who died of meningitis in April 2008, aged just 4.
Siobhan said ‘Aoibhe was taken from us so suddenly, and without warning in Apirl 2008.. We wanted to mark her life in some way, and to raise awareness of meningitis so that other families don’t suffer the way we did, and still are.
Aoibhe adored rainbows, and we thought we should remember her sense of fun and enjoyment of life. What better way to do that then to invite everyone who knew and loved her, and the local community in which she lived, to get together.
Siobhan continued: ‘We wanted to make it an enjoyable day’, and so the focus was on fun. After the short memorial walk around the grounds of the local secondary school, complete with characters including Cat in the Hat, Dora, Mickey and Minnie Mouse and the White Rabbit, everyone got into the festive mood on the Wheel of Fortune, Guess the Sweets in a Jar, and Wellie throwing stands. We were absolutely delighted that so many people from Galway and Oranmore have been able to come along. And it was great to see our sporting heros there too – we are very grateful for their contribution to the day’.
The thousands of euro raised on Saturday are being donated to the Meningitis Trust and Carole Nealon, General Manager of the Trust said: ‘It is absolutely amazing what Siobhan, Noel and their family and friends have achieved. In the midst of their awful grief, they have thought of others, and we are honoured to have been chosen to benefit from this event. The money raised on Fun Day will make a huge difference to people struggling with the impact of meningitis in Ireland right now.’
With hundreds of new cases of meningitis every year, the Meningitis Trust offers support to individuals and families struggling with it’s impact in Ireland through a range of professional support services. These include a Freephone 24-hour nurse-led Helpline (1800 523 196), home visits, counselling and bereavement support.
Although meningitis can strike in an instant, its effects can last a lifetime. Up to 10% of patients may die, as tragically happened in Aoibhe’s case. Even for those who survive, they can be left with devastating after-effects including, loss of hearing and sight, brain damage, epilepsy and where septicaemia has occurred, loss of limbs and scarring. For many, the suddenness of the disease and the speed with which it develops is both shocking and overwhelming – leaving families stunned and traumatised. The Trust is there to support anyone who needs it, for as long as they need it.
1st June 2009 - Flora Women's Mini Marathon back to top The Meningitis Trust Team raised much-needed funding for the charity, which gets no statutory government funding and so relies on voluntary donations to continue services for people and families affected by meningitis. These include a Freephone 24-Hour nurse-led Helpline (1800 523 196), bereavement and family counselling, and home visits by the Trust's Community Nurse. The success of the mini marathon was also due to our volunteers, including those from Beaufort College, and to the staff, families, children and friends who joined us for the after-race reception. And last but by no means least, to Edelman and our fantastic volunteer masseurs Maeve and Stephen. Hope to see you all again in 2010!Pictures of the event are available to purchase on http://www.davidstanwayphotography.com under Sales and Events. |   |
| World Meningitis Day – April 25, 2009 back to top Ireland’s meningitis charities are working together to increase public awareness of the devastating disease on the world’s first international Meningitis Day. April 25 has been chosen as World Meningitis Day 2009 by the Confederation of Meningitis Organisations (CoMO) which brings together meningitis organisations from all over the world to alert people to the signs and symptoms of the disease, to promote the need for vaccines and to make sure support is available to all those affected by meningitis. Meningitis Research Foundation and Meningitis Trust - both members of CoMO - are uniting their efforts to alert people about meningitis as part of a day of international activities. April 25, 2009, will be the first World Meningitis Day and it is hoped people around the globe will join hands to draw attention to meningitis and its life changing after-effects. In Ireland, this will be through a virtual joining of hands on the CoMO website (www.comoonline.org) which will have links from the charities’ websites (www.meningitis.org, and www.meningitis-trust.ie Chris Head, Chief Executive of Meningitis Research Foundation commented: “Meningitis is a global killer, affecting 250-300 people every year in Ireland and millions more around the globe. We hope World Meningitis Day will highlight the global impact of these diseases and the importance of continued research, education and awareness in creating a world free from meningitis and septicaemia.” Carole Nealon, General Manager of the Meningitis Trust, added: “For every individual across Ireland who has meningitis there are many more who have been touched by the disease and for many their lives have changed forever. We hope World Meningitis Day will show them that they are not alone and that meningitis organisations across the world are working together to help save lives.”
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Topaz & Meningitis Trust launch Nationwide Campaign to raise awareness of Meningitistop
The Meningitis Trust, Ireland’s leading meningitis charity and Topaz, the country’s largest fuel and convenience retailer, have joined forces to increase awareness of the disease, and to raise funds to help families who have been affected. Each year in Ireland, meningitis kills more children under 5 than any other infectious disease. Many people are still unaware of the symptoms, that adults can get it too, or that early diagnosis and timely medical intervention does save lives. Meningitis Trust provides ‘Signs and Symptoms’ cards and a 24-Hour Helpline for anyone who might be worried, and life-time support to bereaved families and to survivors of meningitis, many of whom have to live with after-effects including deafness, behavioural problems and epilepsy.
To help raise awareness of the disease, ‘Signs and Symptoms’ cards are now available free of charge at all Topaz-owned sites nationwide, for people to keep in their wallet or purse. The cards show the most common symptoms of meningitis, which in adults can include aversion to bright lights, vomiting and severe headache and in children may include dislike of being held, stiff and arching back and/or a strange-sounding cry. In some, but not all cases, a rash may appear.
As well as the awareness-raising cards, each Topaz outlet has a Meningitis Trust ‘Baby’ collection box on their counter, and customers are being asked to dig deep to raise much-needed funds for the Trust’s services.
Carole Nealon, General Manager of the Meningitis Trust underlined the importance of the partnership:
‘This is, in many ways, a watershed moment for the Meningitis Trust’ she said. ‘Topaz has, through its network of stations, and with the support of it’s staff, enabled us to reach out to people in literally every corner of Ireland to tell them about meningitis, and for that we are truly grateful. I have no doubt that this partnership will help reduce the toll of suffering caused by this terrible disease. Meningitis can strike in an instant, but its impact can last a lifetime.
Carole continued: ‘despite our best efforts, the Meningitis Trust still receives no statutory funding for our services. That is why the collection boxes in Topaz stores will play such an important role in ensuring that we can continue to reach out to those who need our support, not just today, but into the future.’
Danny Murray, CEO of Topaz said ‘We are delighted to be working with the Meningitis Trust and hope that we can help them raise a significant amount of money over the course of the coming year. Meningitis can touch any family in the community at any time and as we have a network of stations nationwide we feel that we are the perfect partner for this nationwide appeal. Our presence is woven in to the fabric of every community in Ireland and we are delighted to use this presence in any way that benefits the community in increasing awareness of meningitis’
9th January, 2008
National Irish Bank has today named the Meningitis Trust as its official charity partner for 2008, succeeding a successful partnership with the Marie Keating Foundation in 2007.At the beginning of each year National Irish Bank forms a twelve-month partnership with a community-based national charity. The Bank’s criteria requires that the charity operates at a national and regional level and is involved in awareness raising or information sharing and be in a position to support fundraising activities in National Irish Bank branches and business centres throughout the country.
Charities from all over Ireland were invited to apply. The applications were scored by an internal panel of judges and a short-list of three was presented to National Irish Bank staff who then voted on their preferred choice.
The Meningitis Trust is Ireland’s leading meningitis charity, offering life-time support to families who are coping with bereavement, the trauma of the disease or living with its after-effects. The Trust, which receives no statutory Government funding, offers free counselling, one-to-one meetings and a 24-hour nurse-led Helpline and also aims to raise awareness via information and education programmes amongst the general public and both health and childcare professionals.
According to Brendan O’Hora, Head of Communications, National Irish Bank, the choice of charity partner is an important one. “We are very proud of the National Irish Bank Charity of the Year programme, which allows us to make a real difference to one charity and the community in which it operates. Meningitis kills more under-5s in Ireland than any other infectious disease, but can affect people of all ages. We are delighted and proud to be associated with the Meningitis Trust, which performs a crucial role in supporting those affected by this terrible disease and also raising awareness of symptoms and signs of infection.”
The Charity of the Year becomes a focus for National Irish Bank’s staff fundraising activities throughout the year. Its appointment as Charity Partner means that the Meningitis Trust will receive the proceeds of all National Irish Bank fundraising conducted during 2008 as well as support for a number of the Trust’s fund-raising events, such as the annual Women’s Mini-Marathon and corporate fundraisers. National Irish Bank will help to generate awareness of the disease by distributing ’Signs and Symptoms’ cards – which can literally save a life – throughout branches, directly to its staff and to the parents of those attending National Irish Bank’s annual FAI Summer Soccer Schools.
Carole Nealon of the Meningitis Trust said, "The Meningitis Trust would like to thank National Irish Bank for this generous initiative. Meningitis is the disease most parents fear and early diagnosis is crucial. We are confident that the support of National Irish Bank and its staff will help us to reach an even wider section of the community with our live-saving Signs and Symptoms literature. In particular we want to reach teenagers and students as they are the second most at risk group but symptoms can often go undiagnosed until it is too late. The Meningitis Trust relies almost entirely on public donations to continue our work and so the partnership will also provide crucial funding to facilitate ongoing support of those affected by meningitis in Ireland, enabling survivors and the bereaved to cope and to move forward with their lives."
Dublin Bus Community Support Programme Award back to top
In September 2007, in the exhalted company of An Taoiseach Bertie Ahern, and well known ex-Irish footballer and Sunderland FC Chairman Niall Quinn, the Meningitis Trust was awarded one of the top accolades at the Dublin Bus Community Support Programme awards held at the Burlington Hotel Dublin.The Trust was one of just 15 community and charity organisations to receive the top award of €5,000. A further 81 organisations were awarded €2k, while 146 received €1k each. The money will enable 60,000 ‘Signs and Symptoms’ cards to be distributed, and for awareness talks to be given to health and childcare professionals in the Dublin Bus area.
